I haven't written about this but my last grandaughter was born with a rare blood disease. She is only the 4th known person to have this. She broke out in blotches all over her body within a few hours of birth. For every blotch outside, theres a lesion inside that bleeds. She had 30-40 in her bladder, and the same amount in her upper and lower intestines. They would swell and burst, at times blood was going out faster than they could put it back in. There were drs from all over America consulted with and some in Sweden. The name is - multifocallymphangioendothelomatosis. She was home for 6 weeks and led a somewhat normal life. They had done lazer surgery in her stomach and had cancer treatments to shrink these lesions, or tumors. She still bled some, but it was not bad. They had used an experimental drug to stop the bleeding with no bad effects, but was the first baby to get it. Last night she was taken to the hospitol with blisters in her mouth and throat, she also had a severe infection in her stomach from some kind of a parasite. They were warned about having cats around her, but the dil kept them. I believe the parasite came from the cats. Her breathing stopped and they bagged her, blowing one lung, she was stat flighted to St Louis last night. I left work early today. She is on life support and not expected to live. She has pneumonia in the lung she has left and has not responded to any treatment. We've been fighting this for over 3 months now. Lots of prayers have gone out, but more are needed. For those of you who believe, I'd appreciate any, and all prayers. POWDERMAN.
